Expert's Corner

 

 

Ask the Founder


VBF Announces "Ask The VBF Founder." Linda Rozell-Shannon is the leading lay expert (non doctor) in the world on the subject of vascular birthmarks.

 

Babies with Birthmarks™

Our newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention.

Recent Medical Papers and Research

New Research Out of Boston


Dynamic Cooling Paper by Dr. Nelson and Wangcun Jia


Arterio-venous Malformations Powerpoint Presentation


PWS paper by Dr. Mihm and L. Rozell-Shannon


SWS Glaucoma Facts by L. Rozell-Shannon and Dr. Fay

Test for Birthmarks

Psychosocial and Emotional Issues for Individuals with a Port Wine Stain

Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

Ulcer Care and Treatment (pdf)

Frequently Asked Questions

Are birthmarks hereditary?

If you or another member of your family have a vascular birthmark and you are concerned that your child may be born with one, please know that there is NO evidence to show that vascular birthmarks are hereditary.

Currently, it is thought that some vascular birthmarks, hemangiomas in particular, may be caused from cells that break apart from the placenta and travel to the baby, becoming lodged. Placental problems may explain why some families have more than one instance of vascular birthmarks. The VBF is trying to compile data on this subject and we need to hear from you. If you have a child with a vascular birthmark and know of any problems during your pregnancy, or if you have a vascular birthmark and know that your mother had placental related pregnancy problems, we want to hear from you. Click here to find out how you can help.

Can you recommend a doctor in my area?

The VBF maintains a list of all physicians that we know of who treat vascular birthmarks. If there is not a physician listed for your state, please check a neighboring state.

Additionally, VBF's experts cannot give an opinion on any doctor you have been referred to.

If there is no physician listed in your area, please try our Discussion Forum. We have over 1500 members there, spread out all over the world and, chances are, someone there will be able to help you.

I have a black, brown, or tan birthmark. What can be done to have it removed?

Vascular birthmarks are red, blue, pink, or purple in color. Black, brown, or tan birthmarks are not vascular. They are commonly referred to as cafe-au-lait spots, congenital nevi (moles), or mongolian spots. Brown birthmarks do not usually require care unless they have irregular borders, bleed, or are located on the midline of the back or on the scalp. The type of physician you should seek is a qualified dermatologist.

All congenital nevi, or moles, should be evaluated by a physician.

A wonderful resource for this is located at the American Academy of Dermatolgy's website. There is a PDF file there for download.

Will my child's hemangioma grow more?

Hemangiomas can grow for up to 18 months and then begin a long slow regression known as involution. This involution can last from 3- 10 years. Some hemangioma don't grow at all. Some grow rapidly, some slowly. No one can predict the rate at which hemangiomas can grow.

What are the treatment options for hemangiomas?

There are many options for treatment. Which option you choose should be a decision made by the patient or parent and a qualified physician.

  • Observation: We recommend regular follow-up visits with your physician and that you photograph the lesion with something (a coin or a tape measure) in the photo to show scale.
  • Systemic corticosteroids
  • Intralesional steroids: These are steroids that are injected into the hemangioma.
  • Interferon (Aldara): This treatment may take serveral months to complete.
  • Laser treatment
  • Surgical Excision

What kind of laser treatment should we seek?

For hemangiomas, a Pulsed Dye Laser or Nd: YAG are appropriate for smaller lesions.

For port wine stains, a tunable dye laser is the treatment of choice.

Can I send you a photograph?

YES! We encourage you to send a photograph of the birthmark that you have a question about. There is a space in the Ask The Expert form for you to do just that. Please:

Only one photo.


Only .jpg, .gif, or .bmp files. We do not receive .zip files, .exe files, .doc files, or .txt files. They are kicked out of our system as their contents can be damaging or can contain viruses.


Try to minimize the file size as much as possible.

I wrote to an expert last week and haven't heard anything! What gives?

Our experts have private practices, donate their time and talents to charities when they can, and also try to have lives! While we try to have a turn-around time that is less than one week, it's not always possible.

If you need an answer sooner, please use our regular contact form. This goes to the Webmistress and then is sent to the appropriate people for an answer. Another good idea is to use our Discussion Forum, where you can post photos and get answers from experienced parents and other patients.

Parent's
Corner



Information for Parents

DOA Logo
Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness


Good Search

What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission... every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.com

If you think your child has a hemangioma Click Here...
hemangioma
If you think you or your child has a port wine stain Click Here...
Before and after of port wine stain
If you think you or your child has a venous malformation Click Here...
Before and after of venous malformation

Chapters of the VBF

VBF
VBF Europe
VBF Russia
VBF Spain
VBF Peru
VBF Latin American
VBF New Zealand
VBF Australia
VBF India
VBF Africa
VBF Asia
VBF Poland
VBF Philippines
VBF Vietnam
VBF Israel
Sturge-Weber Syndrome Community
SWSC-Canada

Partners

Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks


Publications for Parents:

  • VBF Vascular Birthmarks Brochure - Download and Print - A comprehensive brochure describing all vascular birthmark types, syndromes and treatment options. To print, click here (you will need the Acrobat Reader to view and print this document).
  • Doctor Visit Survey Have you been seen by a doctor to assess a vascular birthmark? Please click here and complete our survey. This survey will be used to provide feedback to the doctors about the information and treatment they provide to families affected by a vascular birthmark. Complete your survey and mail to Corinne Barinaga, c/o VBF Director of Information Services, PO Box 106, Latham, NY 12110.
  • Before you visit, email, or speak to a birthmark specialist, be sure to read our Checklist for Parents!
  • Dr. Rosen's Vascular Birthmark Information for Parents
  • Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

You will need Adobe's Acrobat Reader to open and print the pdf documents. If you do not already have it installed, you can find it here.

You will need Microsoft's Word to open and print the Word Documents.

RECRUITING SUBJECTS FOR A RESEARCH STUDY ON FACIAL BIRTHMARKS